There was a time in which the experience and identity of someone as a Sib* was not recognized, or was invalidated. As Sibs, we intrinsically know that our experience is different, that our needs are unique, and that it is important to understand more.

Research is being done:

National Sibling Leadership Network – information about Sibling research

Rehabilitation Research and Training Center on Developmental Disabilities and Health

Vanderbilt Kennedy Center – including an extensive Sib study


*Sib = sibling of an individual with a disability, particularly a disability with cognitive impacts

If you have any questions regarding research, please contact Eunice Im at